We use community influencers and social media to reach people who may be a good match. This typically involves reaching out to people of the same ethnic or racial background. It is helpful if we can share the patient’s story – their family life, their interests and their hope for the future. This is optional, of course, and some patients choose not to share their stories.
We don’t run a registry ourselves. We work closely with the UK registries, Anthony Nolan, DKMS and the British Bone Marrow Registry and helped to set up the Cyprus registry the Karaiskakio Foundation. We also liaise with other stem cell registries across the world.